What an Amazing Day!

Together with our sponsors, donors, and attendees, we raised over $250,000 at our annual fundraiser—Swing for a Cure.

Click below to check out images from the event.

SWING FOR A CURE

Meet Jack

Join Jack’s Team and help us find a cure for PURA Syndrome.

Meet Jack

Our Mission

Let's get down to Business. Join Jack's Team.

Mission
“Science has undergone epic changes. The opportunities are tremendous. Envision the future that is now possible.”
 
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THE SCIENCE

Join the Conversation

View fullsize Swinging into a new week like….
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View fullsize Thank you Island Dolphin Care @idckeylargo for a memorable visit with our entire family. Your team was so warm and welcoming 💙We also learned a lot! #islanddolphincare #keylargo
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View fullsize Thank you to the amazing team @smiletherapyforkids for a fantastic intensive! 💙🇨🇦💙A few videos showing Jack hard at work 💪🏻 We ❤️Smile Therapy!
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View fullsize An incredible start to 2023! Jack never ceases to amaze us! Thank you to Frederick, Jeff, Weezie & Tom who made Jack’s 1st time on skis @stowemt an amazing experience for him and his siblings ❤️#stowe #adaptiveskiing
View fullsize Merry Christmas 🎄 ❤️🎄
View fullsize Meet our team of scientists on Monday, October 24th during our briefing on Jack’s Tomorrow! Registration link in bio.
View fullsize Join us on Monday, October 24th at 4:30pm ET for a briefing about Jack’s Tomorrow. Learn more about the PURA Syndrome Cure Roadmap that our team of scientists have developed. Registration link is in the bio: https://jacks-tomorrow-briefing.open
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