
PURA Syndrome Research Update
PURA Syndrome Research Update
April 8th, 2025
We hosted a scientific briefing on the work being funded to find a cure for PURA Syndrome, work that your support has made possible! Watch the video to hear from our partners on their progress and all the work that is currently underway.
Now, why not check out our previous research update and learn more about the cure roadmap we put together when we founded Jack’s Tomorrow. There is still much work to do but we could not have come this far without your support.
YOUR SUPPORT MATTERS
Your support directly helps us fund important work like this.
Consider a donation today and join the Jack’s Tomorrow team as we find and fund a cure for PURA Syndrome.