PURA Syndrome Cure Roadmap
2022 PURA Syndrome Research Update
October 24th, 2022
The PURA Syndrome Cure Roadmap was presented to families on October 24, 2022 in a Zoom community briefing that we now host annually called the PURA Syndrome Research Update.
Watch the original briefing below and learn about our PURA Syndrome Cure Roadmap
Watch the Current Research Update
Now, why not check out our most recent research update and learn more about the work we do with our research partners to accelerate the path to a cure for PURA Syndrome.
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