Save the Date!

We’re thrilled to announce that Westhampton Country Club will host us again next year.  Plan a fall weekend in the Hamptons and join us for great golf, food, drinks, and company—all supporting critical PURA Syndrome research.

Thursday, October 1, 2026

So mark you calendars and spread the word!

MARK YOUR CALENDARS

Meet Jack

Join Jack’s Team and help us find a cure for PURA Syndrome.

MEET JACK

Our Mission

Let's get down to Business. Join Jack's Team.

OUR MISSION
“Jack’s Tomorrow ... has done an amazing job developing resources such as animal models of PURA Syndrome which can empower researchers to learn more about the disease and test potential treatments which might one day make it into human clinical trials.”
— Andrew Steinsapir, Gene Therapy Expert
 

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View fullsize Help us find a cure! ⛳💛 Join us for Swing for a Cure on Thursday, October 1st, 2026 at Westhampton Country Club as we raise funds to help find a cure for PURA Syndrome. This year, we raised $250,000 for PURA Syndrome research and we hope to surpass
View fullsize A heartfelt thank-you to Greg Lambert and Elizabeth Lucy for hosting “Tate-a-Palooza,” a fundraiser held in honor of their son Tate who was diagnosed with PURA Syndrome in 2023, that raised $10,000 for Jack’s Tomorrow! 🧬 💛 🎉 The
View fullsize 🌟 2x votes today for Colette! Raise Awareness for Rare Disease! 🌟 Colette is a quarter-finalist for Baby of the Year, and voting to keep her in the competition ends TOMORROW at 7 pm PST. We recently spent time with Colette at our annual golf ou
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View fullsize What an amazing day! You helped make this year’s Swing for a Cure our best year yet! Your generosity has been truly extraordinary. Together, we raised more for PURA Syndrome research this year than ever before—raising $250,000, surpassin
View fullsize We first connected with Colette’s family when her grandfather reached out to us through our website. Colette, who had just been diagnosed with PURA Syndrome, was still in the NICU. We immediately set up a Zoom call with Xander and Kim to see ho
View fullsize A beautiful afternoon 💙🍁💙
View fullsize What a year it has been at Jack’s Tomorrow! 🎉💙 We started this journey inspired by our sweet Jack, and now it’s grown into something so much bigger—a movement full of love, hope, and community. This is about building a future whe
View fullsize 🎉 A huge THANK YOU to our incredible Swing for a Cure sponsors! 🎉 Your support means the world to us and directly fuels progress in PURA Syndrome research. Because of you, our community can come together for pickleball, celebration, and impact. ⚡
View fullsize 💙 Just 1 week until Swing for a Cure! Join us for pickleball, community, and a cause—every step brings us closer to a treatment for PURA Syndrome. 🤝 Volunteer on September 25th! 🎾 Join our pickleball clinic! 👉 Sign up today: JacksTomo
View fullsize Since Jack’s diagnosis in 2019, the number of known patients with PURA Syndrome has grown from 250 to 780 worldwide. This rise isn’t just numbers—it reflects an increase in the accessibility of genetic testing. Learn more about PUR
View fullsize 🏌️ VOLUNTEERS NEEDED! 🏌️ Join us for SWING FOR A CURE - Our biggest fundraiser of the year! 📅 September 25th 📍 Westhampton Country Club We need YOUR help to make this incredible event a success! Every volunteer makes a difference as we work